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CARE Act Title I Manual - 2003 Version |
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Chapter
1
Planning Council Duties
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Introduction
Use
of Title I CARE Act funds is guided by planning, which takes place
through the Title I planning council established by the chief elected
official (CEO) of each Title I eligible metropolitan area (EMA).
The planning council is not advisory. It has legislative authority
to carry out its assigned tasks, along with roles recommended by
HRSA’s HIV/AIDS Bureau (HAB), Division of Service Systems (DSS).
The planning council takes the lead in conducting many of its responsibilities
and shares duties with the grantee in some areas. To guarantee that
a broad range of ideas are heard, the planning council membership
must reflect specific areas of expertise as well as disproportionately
affected and historically underserved populations.
Each planning council’s responsibilities are to:
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Establish
operations to make planning tasks function smoothly.
Examples include procedures for membership (e.g., nominations
procedures to secure new members), decision making (e.g.,
open meeting processes, grievance procedures related to funding
decisions, conflict of interest), and other tasks.
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Assess
the EMA’s HIV/AIDS service needs.
In particular this includes assessing the biggest gaps in care
by determining the needs of those who know their HIV status
but are not in care, as well as disparities in access to care
across affected groups. This assessment must include a public
process to obtain community input on needs and priorities.
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Establish
priorities for the allocation of funds.
Decisions are to be based on a needs assessment; the cost effectiveness
and outcome effectiveness of purchasing specific services; priorities
in HIV-infected communities within the EMA; and the availability
of other governmental and nongovernmental resources.
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Develop
a comprehensive plan for the organization and delivery of HIV
services that is compatible with existing State and local plans.
As part of the plan, the EMA must coordinate use of CARE Act
dollars with other programs, including prevention and substance
abuse services. Part of this is done through participation in
the development of a Statewide Coordinated Statement of Need
(SCSN), which is a mechanism CARE Act programs use to address
HIV/AIDS care issues and enhance coordination.
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Assess
the efficiency of the administering agency in rapidly allocating
funds to areas of greatest need. The
planning council may also, at their discretion, assess how well
services that are funded by the grantee address the planning
council’s priorities, allocations, and instructions for addressing
these priorities. (Relatedly, evaluation of how well services
are being delivered and the cost effectiveness of such services,
are to be undertaken separately under the leadership of the
grantee.)
Legislative
Background
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The
CARE Act specifies the following mandated activities that planning
councils must accomplish.
Planning Body Operations
Section 2602(b)(5)(A) prohibits the planning council from being
"directly involved in the administration of a grant" under
Title I and does not permit it to "designate (or otherwise
be involved in the selection of) particular entities as recipients"
of Title I funds.
Section 2602(b)(6) requires the planning council to "develop
procedures for addressing grievances with respect to funding,"
and to describe these procedures in its bylaws.
Section 2602(b)(7)(A) prohibits the planning council from being
"chaired solely by an employee of the grantee."
Section 2602(b)(7)(B) states that:
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"The
meetings of the council shall be open to the public and shall
be held only after adequate notice to the public.
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The
records, reports, transcripts, minutes, agenda, or other documents
which were made available to or prepared for or by the council
shall be available for public inspection and copying at a single
location.
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Detailed
minutes of each meeting of the council shall be kept. The accuracy
of all minutes shall be certified to by the chair of the council.
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This
subparagraph does not apply to any disclosure of information
of a personal nature that would constitute a clearly unwarranted
invasion of personal privacy, including any disclosure of medical
information or personnel matters."
Needs Assessment
Section 2602(b)(4) requires the planning council to:
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"determine
the size and demographics of the population of individuals with
HIV disease;
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"determine
the needs of such population, with particular attention to:
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individuals
with HIV disease who know their HIV status and are not receiving
HIV-related services; and
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disparities
in access and services among affected subpopulations and
historically underserved communities."
2602(b)(4)(G) requires planning councils to "establish methods
for obtaining input on community needs and priorities which may
include public meetings…conducting focus groups, and convening ad-hoc
panels."
Priority Setting and Resource Allocation
2602(b)(4)(C) requires planning councils to "establish priorities
for the allocation of funds within the eligible area, including
how best to meet each such priority and additional factors that
a grantee should consider in allocating funds under a grant based
on the:
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size
and demographics of the population of individuals with HIV disease
(as determined under subparagraph (A)) and the needs of such
population (as determined under subparagraph (B));
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demonstrated
(or probable) cost effectiveness and outcome effectiveness of
proposed strategies and interventions, to the extent that data
are reasonably available;
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priorities
of the communities with HIV disease for whom the services are
intended;
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coordination
in the provision of services to such individuals with programs
for HIV prevention and for the prevention and treatment of substance
abuse, including programs that provide comprehensive treatment
for such abuse;
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availability
of other governmental and nongovernmental resources, including
the State Medicaid plan under Title XIX of the Social Security
Act and the State Children’s Health Insurance Program under
Title XXI of such Act to cover health care costs of eligible
individuals and families with HIV disease; and
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capacity
development needs resulting from disparities in the availability
of HIV-related services in historically underserved communities…."
Allocation of Funds to Services for Infants, Children, Youth, and
Women
Section 2604(b)(4) specifies that "[f]or the purpose of providing
health and support services to infants, children, youth, and women
with HIV disease, including treatment measures to prevent the perinatal
transmission of HIV, the chief elected official of an eligible area,
in accordance with the established priorities of the planning council,
shall for each of such populations in the eligible area use, from
the grants made for the area under section 2601(a) for a fiscal
year, not less than the percentage constituted by the ratio of the
population involved (infants, children, youth, or women in such
area) with acquired immune deficiency syndrome to the general population
in such area of individuals with such syndrome."
This provision does not require planning councils to create a special
priority for services to these populations. A waiver to this provision
can be granted when EMAs can demonstrate that the needs of each
population or combination of these populations is being met through
other programs such as Medicaid, State Children’s Health Insurance
Program (SCHIP), or other CARE Act titles.
Comprehensive Planning
2602(b)(4)(D) requires the planning council to "develop a comprehensive
plan for the organization and delivery of health and support services
described in section 2604 that:
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"includes
a strategy for identifying individuals who know their HIV status
and are not receiving such services and for informing the individuals
of and enabling the individuals to utilize the services, giving
particular attention to eliminating disparities in access and
services among affected subpopulations and historically underserved
communities, and including discrete goals, a timetable, and
an appropriate allocation of funds;
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includes
a strategy to coordinate the provision of such services with
programs for HIV prevention (including outreach and early intervention)
and for the prevention and treatment of substance abuse (including
programs that provide comprehensive treatment services for such
abuse); and
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is
compatible with any State or local plan for the provision of
services to individuals with HIV disease…."
Coordination
Section 2602(b)(4)(F) calls for the planning council and grantee
to "participate in the development of the statewide coordinated
statement of need initiated by the State public health agency responsible
for administering grants" under Title II.
Section 2602(b)(4)(H) requires the planning council to "coordinate
with Federal grantees that provide HIV-related services within the
eligible area."
Assessment of the Administrative Mechanism and Effectiveness of
Services
2602(b)(4)(E) requires planning councils to "assess the efficiency
of the administrative mechanism in rapidly allocating funds to the
areas of greatest need within the eligible area, and at the discretion
of the planning council, assess the effectiveness, either directly
or through contractual arrangements, of the services offered in
meeting the identified needs."
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ENTITIES
IN THE TITLE I CARE ACT STRUCTURE
Community planning and local decision making are at the core
of the Ryan White CARE Act. Many parties are involved in carrying
out CARE Act planning. This structure provides a diversity
of input in the decision-making process but also involves
challenges in managing conflicts of interest, multiple political
and programmatic agendas, and competition for scarce resources.
Key entities in Title I include: HAB/DSS, the chief elected
official (CEO) of the EMA, the designated local entity administering
CARE Act dollars, service providers, affected communities,
and people living with HIV disease (PLWH).
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Chief Elected Official (CEO).
The official recipient of Title I funds in each EMA is
the CEO of the city or county that administers the public
health agency providing health care to the greatest number
of individuals with AIDS. Usually, the CEO is a
mayor, county executive, or chair of the county board
of supervisors. The CEO has ultimate responsibility for
administering the Title I program and ensuring that all
legal requirements are met.
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Grantee.
The CEO is the official Title I grantee. However, the
CEO usually delegates authority for administering Title
I funds to a public agency or unit—most often the health
department. This entity is also referred to as the grantee.
Using the terms CEO and grantee helps to distinguish between
the person ultimately responsible for the CARE Act grant
(the CEO) and the entity responsible for day-to-day operations
associated with the program (the grantee).
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Administrative
or Fiscal Agent. Sometimes
the grantee agency administers the Title I program directly.
Sometimes it chooses another organization, agent, or other
entity (e.g., public health department, community-based
organization). This entity is called an administrative
or fiscal agent because it assists in carrying out administrative
activities (e.g., disbursing program funds, developing
reimbursement and accounting systems, developing requests
for proposals, monitoring contracts).
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HAB/DSS
Expectations
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Fulfilling
Planning Council Duties
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Planning
Council Operations
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Planning councils must set up planning council operations to
help the planning council to operate smoothly and fairly. This
includes such features as bylaws, open meetings, grievance procedures,
and conflict of interest standards. (See below and chapters
on Grievance Procedures and conflict of Interest.)
Open Meetings. Section 2602(b)(7)(B)
of the CARE Act requires that planning council deliberations be
public.
Council Chair. The legislation
specifies that an employee of the Title I grantee may not be the
only chair of a planning council. An employee of the grantee may
serve as a co-chair, provided the bylaws of the planning council
permit or specify that arrangement.
Meetings and Minutes. To comply
with legislative requirements around open meetings and public access
to minutes and other planning council documents, planning councils
must:
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Ensure
that meetings are open to all members of the general public
and maintain a system that provides for public written notice
of all council meetings. This includes publication of the meeting
notices in local print media and through other forums accessible
to the disabled (i.e.,
the hearing- or speech-impaired).
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Have
a summary of the minutes certified by the chair of the planning
council available for public inspection. The complete transcript
of minutes should be available within six weeks after the meeting
date.
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Have
a publicly accessible location where minutes and other legislatively
required information can be inspected and copied if requested.
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Take
appropriate steps to guard against disclosure of personal information
that would constitute an invasion of privacy.
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Make
available for public inspection records of the recommendations
made by committees or other subgroups to the planning council,
as well as the subsequent actions taken by the planning council.
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Where
local, county, or State regulations, ordinances, or statutes
are more stringent than the CARE Act requirements, follow these
more stringent requirements.
Needs Assessment
Priority Setting and Resource Allocation
Comprehensive Planning
Coordination
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The planning council also looks for ways that Title I services
work to fill gaps in care with other CARE Act programs through
the Statewide Coordinated Statement of Need (SCSN); special
attention to early intervention services, HIV prevention, and
substance abuse prevention and treatment; and ongoing coordination
with other services like Medicaid. (See chapters on Title I
and II Coordination, Care/Prevention Collaborative Planning,
SCSN, and Managed Care and HIV Disease.)
Assessment of Administrative Mechanism, Effectiveness of Services
in Addressing Priorities
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The planning council assesses the efficiency of the administrative
mechanism, which entails evaluation of how efficiently providers
are selected and paid and how well their contracts are monitored.
This assessment should also review the planning process used
by the EMA prior to procurement of services and disbursement
of funds. (See attached sample.) In addition, the planning council
may also, at their discretion, assess how well services that
are funded by the grantee address the planning council’s priorities,
allocations, and instructions for addressing these priorities.
Generally, assessments are based on time-framed observations
of procurement, expenditure, and reimbursement processes. For
example, an evaluation could identify the percent of funds obligated
within a certain time period (e.g.,
90 days) from the date of grant award. Similarly, reimbursement
processes can be tracked from date of service delivery through
invoicing to payment, with documentation of any adverse impact
on clients or providers related to delayed payments. HAB/DSS
will occasionally request information about the assessment or
require EMAs to submit a copy of the most recent administrative
assessment as part of progress reports or grant applications.
In evaluating the administrative mechanism, communication between
the grantee and planning council is essential so that information
can be efficiently shared. The planning council and grantee
should establish, before the procurement process begins, a memorandum
of understanding outlining a process and timeline for sharing
data necessary to evaluate the administrative mechanism. The
grantee must communicate back to the planning council the results
of its procurement process. The planning council may then assess
the consistency of the procurement process with its stated service
priorities and allocations.
If the council finds that the existing mechanism is not working
effectively, it is responsible for making formal recommendations
for improvement and change. The grantee or administrative agency
then needs to respond to the planning council in writing, informing
it of corrective actions to be taken to improve or change the
system. The planning council also has the right to bring a formal
grievance if the grantee’s disbursement of funds is inconsistent
with the planning council’s priorities and resource allocations.*
The planning council also has the option of evaluating the "effectiveness
of the services offered in meeting identified need." This
means that the planning council can assess whether the services
that have been procured by the grantee are consistent with stated
planning council priorities, resource allocations, and instructions
as to how to meet these priorities. However, assessing the administrative
mechanism is not an evaluation of the grantee or individual
service providers, which is a grantee responsibility. (See outcomes
evaluation and cost-effectiveness chapters in this section of
the manual.)
Evaluation
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The planning council and grantee should determine what impact
services are having on client health outcomes (outcomes evaluation)
and also examine the cost-effectiveness of the services being
delivered. (See chapters on Outcomes Evaluation and Cost Effectiveness.)
* For more information, see the chapter on Grievance Procedures
in this manual.
Relationships
Among Title I Entities
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In
order for planning councils to function in the most efficient manner
possible, it is important to understand the relationships between
and among grantees, planning councils, PLWH, and planning council
support staff (including consultants and shared staff of the council
and grantee).
Planning Council and the Grantee
The planning council is a legislatively constituted body with clearly
defined responsibilities in CARE Act planning and decision making.
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planning council is expected to be given full authority and
support to carry out its roles and responsibilities. While the
authority to appoint the planning council is clearly vested
in the CEO, the planning council is not intended to be advisory
in nature. It has legislatively provided authority to carry
out its duties. |
Separation
of Planning Council and Grantee Roles
While the CEO may designate a specific department within local government
to administer the program, it is not appropriate for the grantee
to perform duties related to the planning council’s legislative
responsibilities. A separation of grantee and planning council roles
is necessary to avoid conflicts of
interest. For example, Section 2602(b)(7)(A) of the CARE Act prohibits
the planning council from being "chaired solely by an employee
of the grantee." However, a grantee employee may be a co-chair.
Memorandum of Understanding
To clarify the roles of the planning council and the grantee, and
to encourage a collaborative working relationship, HAB/DSS recommends
that these two entities develop a written agreement (a Memorandum
of Understanding) that identifies the individual and shared responsibilities
of both parties and specifies communication mechanisms. The role
of planning council staff can also be included. The planning council
should establish bylaws and operating procedures that codify this
relationship.
A clear delineation of roles and responsibilities will help ensure
timely and efficient disbursement of Title I funds and facilitate
the development of a continuum of care that addresses the needs
of PLWH.
Persons Living with HIV Disease (PLWH)
In fulfilling its roles and responsibilities, a planning council
must include PLWH in all its activities. The CARE Act Amendments
of 2000 requires that at least 33% of the planning council be individuals
who are receiving HIV-related services funded by Ryan White Title
I and not officers, employees, or consultants to any entity that
receives Title I funds. The individuals who meet the 33% unaligned
definition must (like the planning council as a whole) reflect the
demographics of the population of individuals with HIV disease in
the EMA. *
Inclusion of PLWH brings unique benefits, including a consumer perspective
to all decision making and a link between the planning council and
the community served. It also presents challenges, such as the need
for:
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Training and mentoring to address new member unfamiliarity with
the mechanics of the legislation
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Flexibility to address changing health status
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Methods to channel anger and frustration, and
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Especially for representatives with limited incomes, resources
to address transportation, child care, and financial burdens.
HAB/DSS strongly recommends that planning councils adopt a variety
of strategies to strengthen the effective participation of PLWH.
Two HAB/DSS manuals, the Consumer Digest and the Training
Guide: Preparing Planning Body Members, provide materials to
help address the challenges of recruiting and maintaining the active
participation of people living with HIV disease in planning council
processes.
Planning Council Support
The planning council is likely to need funding to carry out its
responsibilities. HAB/DSS refers to these funds as "planning
council support." Title I formula and supplemental grant funds
can be used as a source of planning council support, but only if
the planning council identifies such support as a priority to
be funded, along with specific care services. Planning Council Support
funds may be used for such purposes as hiring staff, developing
and carrying out needs assessments and estimating unmet need, identifying
barriers to access and care, and conducting planning activities.
**
Procedures
for Selecting Support Staff and Consultants
The procedures to be used in hiring planning council support staff
or contracting with consultants need to be agreed upon ahead of
time with the grantee. Planning council staff may be employed through
the grantee’s payroll system, but measures must be taken to insure
that the planning council, not the grantee, directs the work of
the planning council’s staff.
A planning council is not permitted to be directly involved in selecting
particular entities to receive CARE Act funding for services, but
it can be involved with selecting entities and people to carry out
activities directly related to planning council functioning and
responsibilities. It should be keenly attuned to potential conflicts
of interest (real or perceived) in these hiring decisions. The planning
council must use an open, public process to contract for Planning
Council Support services—preferably a competitive request for proposals
(RFP) process under the direction of the grantee. If a planning
council’s procedures allow planning council members or the agencies
they represent to compete in this process, the planning council
must define specific parameters and processes to manage real or
perceived conflicts of interest. CARE Act Section 2602(5)(B) requires
that a planning council member who has a financial interest in,
who is an employee of, or who is a member of an entity that seeks
to provide planning council support should not be involved in the
selection process.
Shared Staff of Grantee and Planning Council
HAB/DSS discourages the practice of having a single staff person
perform administrative work for the grantee and provide support
to the planning council. However, sometimes—because of limited funds—this
situation is unavoidable. The challenge presented in such situations
is to balance that dual role with the legislative intent of the
CARE Act to provide the planning council with full authority and
autonomy to carry out its mandated responsibilities. Having a single
staff member perform dual roles could compromise objectivity. A
special complication is the planning council’s responsibility to
assess the grantee’s administrative mechanism for distributing and
managing Title I CARE Act funds. A single staff member who performs
both grantee and planning council support roles may be in the conflicted
position of evaluating his/her own work.
To address this challenge, a planning council and grantee sharing
a staff member should:
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Define in writing the functions/activities of planning council
and grantee staff
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Clarify assignments and responsibilities
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Cost out time and ensure that resource needs are reflected in
the budget justifications for Planning Council Support and Grantee
Administration, and
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Clearly specify lines of communication and reporting for the
staff member so that work performed for the grantee is reported
to the grantee contact and Planning Council Support work is
reported to the planning council chair, a committee, or the
full council.
Program
and Fiscal Monitoring
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Program and fiscal monitoring are grantee responsibilities as part
of Tile I grant administration. Program and fiscal monitoring are
related functions. Program monitoring involves assessing the quality
and quantity of the services being provided by a particular contractor.
Such monitoring might include reviewing program reports, making
site visits, and/or conducting a client satisfaction survey.
Fiscal monitoring involves assessing how quickly and efficiently
contractors use CARE Act funds. This type of monitoring includes
review and assessment of monthly expenditure patterns for groups
of service providers, as well as processes to ensure adherence to
Federal, State, and local rules and guidelines on the uses of CARE
Act funds.
Planning councils should request that the grantee or administrative
agency provide them with aggregate summary reports of the information
collected during these site visits. Grantees should not provide
and planning councils should not have access to individual provider
information. Planning councils can greatly benefit from knowing,
for example, the percentage of agencies within a particular service
category that have been able to meet established goals for serving
specified numbers of clients with regard to race/ethnicity and gender,
documenting client health outcomes, implementing quality management
programs and documenting system changes associated with those programs,
etc.
Site visit information provided by the grantee can also help planning
councils evaluate the expenditure patterns of the EMA as a whole
as well as service categories. If money is not being spent in an
efficient manner, planning councils can know early on and reallocate
funds to another service category or direct the grantee to reallocate
on a dollar or percentage basis to other agencies within a particular
service category.
The planning council must be informed of the changes to service
priority allocations that result from any redistribution of program
funds by the grantee. As with the initial disbursement of funds,
the outcome of the redistribution must be consistent with the priorities
and resource allocations of the planning council. Any redistribution
of funds by the grantee that is not consistent may lead to a grievance
by the planning council.
REFERENCES
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Health
Resources and Services Administration (HRSA), HIV/AIDS Bureau (HAB),
Division of Service Systems (DSS). Reauthorization Issues
Letter #2: Planning Council Open Meeting Requirements, January 2001.
HRSA, HAB, DSS. Reauthorization Issue Letter #2b: Planning Council
Open Meeting Requirements (Addendum), 2001.
Notes
*
See chapters in this section on Planning Council Membership, conflict
of Interest, and PLWH/Consumer Participation for more information.
[Return to Text]
** See the chapter in this manual
on administrative costs for further discussion of planning council
support. [Return to Text]
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