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The HIV/AIDS Bureau: HAB Performance Measures / Data Collection and Reporting

 

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Data Collection & Reporting
  1. Are Ryan White HIV/AIDS Program grantees required to submit data to HAB on the defined performance measures?
  2. Can client self-report be used?
  3. Is the denominator for the measures reflecting data available statewide through surveillance (such as number of CD4+ tests and test values) only clients served by a Ryan White HIV/AIDS Program-funded service (seen in the reporting year) or may we report on all known, living PLWH/A in the aggregate?
 
1. Are Ryan White HIV/AIDS Program grantees required to submit data to HAB on the defined performance measures?  TOP

The performance measures represent key clinical decision points and should be included as part of a quality management program for those providing services to the HIV-infected population. While data are not required to be submitted to HAB at this time, grantees are strongly encouraged to track and trend data on these measures to monitor the quality of care provided. Grantees are encouraged to identify areas for improvement and to include these in their quality management plan. This type of information provides rich discussion opportunities with their Project Officers.

In addition, the HIV/AIDS Bureau is pursuing the development of client-level data reporting for all Ryan White HIV/AIDS Program grantees in 2009. Information collected through this process can be used for quality improvement purposes and grantees are strongly encouraged to make use of this resource.

 
2. Can client self-report be used?  TOP

In general, client self-report has been determined to be fairly unreliable. None of the performance measures released in Group 1 allow for client self-reports.

 
3. Is the denominator, for the measures reflecting data available statewide through surveillance (such as number of CD4+ tests and test values), only clients served by a Ryan White HIV/AIDS Program-funded service (seen in the reporting year) or may we report on all known, living PLWH/A in the aggregate?  TOP

For the purposes of these measures, the denominator should include only those clients served by Ryan White HIV/AIDS Program-funded providers.