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Reports & Studies:

2002 Ryan White CARE Act Title II Data Book

   
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Ryan White CARE Act Title II grants are awarded to all 50 States, the District of Columbia, Puerto Rico, and eligible US Territories using a formula based on the estimated number of living AIDS cases. [1] These funds may be used to provide a range of community-based services for persons living with HIV (PLWH).

Fifty-five Ryan White CARE Act Title II grantees contracted with 1,422 agencies/organizations (otherwise referred to as providers) to provide CARE Act eligible services to HIV-positive individuals. They served a total of 605,414 clients of which 497,215 were HIV positive duplicated clients and 108,199 were affected [2] duplicated clients in 2002.

Table of Contents:

  1. Types of Title II Provider Organizations / Agencies Serving Clients
  2. Ownership Status of Title II Organizations/Agencies Serving Clients
  3. Number of Duplicated Clients Served by Title II Providers
  4. HIV/AIDS Status of Duplicated Clients Served by Title II Providers
  5. Gender of Duplicated Clients Served by Title II Providers
  6. Age of Duplicated Clients Served by Title II Providers
  7. Ethnicity of Duplicated Clients Served by Title II Providers
  8. Race of Duplicated Clients Served by Title II Providers
  9. Health Insurance Status of Duplicated Clients Served by Title II Providers
  10. Number of Visits for Health Care and Case Management Services to Title II Providers
  11. Number of Visits per Client to Title II Service Providers
  12. Number of Duplicated Clients Receiving Support Services from Title II Providers
  13. Percentage Distribution of HIV Positive Clients by Gender Receiving Medical Care from Title II Providers
  14. Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from Title II Providers
  15. Data Considerations

 

Types of Title II Provider Organizations / Agencies Serving Clients

N=1,420 providers

Pie Chart containing the following data...
Hospital or University, 168
Publicly funded community health center, 79
Other community-based service organization, 653
Health department, 247
Solo/group Private medical practice, 37
Other*, 63
Other facility, 173

  • Source: 2002 CARE Act Data Report, Section 1, Item 7
  • Two providers did not report provider type information
  • Percentages may not sum to 100 percent due to rounding error
  • Other* includes Publicly funded community mental health center, Substance abuse treatment center, Agency reporting for multiple fee-for-service providers, PLWHA coalition, and VA facility

TABLE OF CONTENTS


 

Ownership Status of Title II Organizations / Agencies Serving Clients

N=1,421 providers

Pie chart containing the following data...
Public/local, 212
Public/state, 174
Public/federal, 5
Private, nonprofit (not faith-based), 860
Private, for-profit, 94
Unincorporated, 2
Faith-based organization, 57
Other, 17

  • Source: 2002 CARE Act Data Report, Section 1, Item 9
  • One provider did not report ownership information
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Number of Duplicated Clients Served by Title II Providers

Bar Chart containing the following data...
HIV Positive New clients, 136,119
HIV Positive Total clients, 497,215
Affected New clients, 66,367
Affected Total clients, 108,199

  • Source: 2002 CARE Act Data Report, Section 2, Items 24 & 25

TABLE OF CONTENTS


 

HIV/AIDS Status of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients

Pie Chart containing the following data...
HIV Positive not AIDS, 222,366
HIV Positive, unknown AIDS, 102,673
AIDS, 172,176
HIV negative, 52,928
Unknown, 55,271

  • Source: 2002 CARE Act Data Report, Section 2, Items 33

TABLE OF CONTENTS


 

Gender of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients


Pie Chart containing the following data...
Male, 391,703
Female, 202,647
Transgender, 5,499
Unknown, 5,565

  • Source: 2002 CARE Act Data Report, Section 2, Item 26

TABLE OF CONTENTS


 

Age of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients

Pie Chart containing the following data...
Less than 2 years, 5,701
2-12 years, 14,797
13-24 years, 31,175
25-44 years, 343,977
45-64 years, 180,088
65 years or older, 7,966
Unknown, 21,710

  • Source: 2002 CARE Act Data Report, Section 2, Item 27

TABLE OF CONTENTS


 

Ethnicity of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients

Pie Chart containing the following data...
Hispanic or Latino/a, 100,220
Non-Hispanic or Latino/a, 459,788
Unknown, 45,406

  • Source: 2002 CARE Act Data Report, Section 2, Items 28
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Race of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients

Pie Chart containing the following data...
White, 225,583
Black, 282,044
Other race, 9,239
More than one race, 19,079
Unknown, 69,469

  • Source: 2002 CARE Act Data Report, Section 2, Items 29
  • Percentages may not sum to 100 percent due to rounding error
  • “Other race” category includes Asian, Native American or Other Pacific Islander, and American Indian or Alaska Native.

TABLE OF CONTENTS


 

Health Insurance Status of Duplicated Clients Served by Title II Providers

N=605,414 duplicated clients

Pie Chart containing the following data...
Private, 47,987
Medicare, 41,179
Medicaid, 149,331
Other Public, 37,741
No insurance, 141,353
Other, 10,144
Unknown, 177,679

  • Source: 2002 CARE Act Data Report, Section 2, Items 32
  • Providers report the medical insurance that provides the most reimbursement if a client has more than one source of medical insurance.
  • Examples of Other Public medical insurance include State-funded insurance plans, military health care (CHAMPUS), State Children’s Health Insurance Program (SCHIP), Indian Health Services, and Veterans Health Administration.

TABLE OF CONTENTS


 

Number of Visits for Health Care and Case Management Services to Title II Providers

Bar Chart containing the following data...
Rehabilitation services, 2,357
Substance abuse services–residential, 14,706
Oral health care, 148,399
Substance abuse services–outpatient, 152,702
Mental health services, 273,938
Home health*, 511,996
Ambulatory/outpatient medical care, 1,247,026
Case management services (among HIV positive clients), 2,656,951

  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • Home health* includes para-professional care, professional care, and specialized care

TABLE OF CONTENTS


 

Number of Visits per Client to Title II Service Providers

Service Number of Service Provider Percent of service providers (N=1,422) Average number of visits per client per provider * Median number of visits per client * Range number of visits per client *
Ambulatory/outpt. medical care
518
36%
6.2
4.9
1-166.7
Mental health services
529
37%
7.3
5.0
1-66.0
Oral health care
394 28% 2.5 2.1 1-13.0
Substance abuse services–outpatient
252
18%
15.1
4.1
1-240.0
Substance abuse services–residential
66
5%
14.1
2.0
1-88.0
Rehabilitation services
55 4% 8.5 2.6 1-160.0
Home health: para-professional care
124 9% 30.3 10.7 1-260.0
Home health: professional care
100 7% 15.9 5.9 1-142.3
Home health: specialized care 57 4% 10.4 5.6 1-72.0
Case management services
(among HIV + clients)
887 62% 15.3 10.6 1-292.5
  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • (*) Data reported in this table are based on valid reports only. Valid data are defined as providers reporting complete data for both the number of clients served and number of visits.
  • For each service type, the actual number of providers serving clients is higher. However, the average number of visits per client was calculated only for those providers with valid data for number of clients served and number of client visits. Providers may offer multiple services; thus, a provider may be included in more than one service category.
  • A client may only have one visit for each service per day. For residential substance abuse treatment, each day in a residence facility equals one visit.

TABLE OF CONTENTS


 

Number of Duplicated Clients Receiving Support Services from Title Providers

Bar Chart containing the following data...
HIV + Health education / risk reduction, 63,884	
HIV + Referral for health care / supportive services, 54,703	
HIV + Client advocacy, 67,275	
HIV + Food bank / home-delivered meals, 67,950
HIV + Transportation services, 66,838	
HIV + Outreach services, 25,581
HIV + Emergency financial assistance, 55,783	
Affected Health education / risk reduction, 52,809
Affected Referral for health care / supportive services, 30,326
Affected Client advocacy, 6,375
Affected Food bank / home-delivered meals, 4,801
Affected Transportation services, 2,748
Affected Outreach services, 42,244
Affected Emergency financial assistance, 3,304

Bar Chart containing the following data...
HIV + Other services, 49,124	
HIV + Psychosocial support services, 49,546	
HIV + Treatment adherence counseling, 54,317	
HIV + Nutritional counseling, 40,421	
HIV + Housing services, 30,182	
HIV + Referrals to clinical research, 10,660	
HIV + Legal services, 10,975
Affected Other services, 8,459
Affected Psychosocial support services, 6,438
Affected Treatment adherence counseling, 1,115
Affected Nutritional counseling, 1,314
Affected Housing services, 1,074
Affected Referrals to clinical research, 673
Affected Legal services, 260

Bar Chart containing the following data...
HIV + EIS* for Titles I and II, 6,458	
HIV + Buddy / companion service, 5,626
HIV + Child care services, 2,193	
HIV + Permanency planning, 2,499
HIV + Day or respite care for adults, 2,514	
HIV + Developmental assessment / EIS*, 1,742	
HIV + Child welfare services, 653	
HIV + Residential or in-home hospice care, 679	
Affected EIS* for Titles I and II, 1,916
Affected Buddy / companion service, 209
Affected Child care services, 2,176
Affected Permanency planning, 522
Affected Day or respite care for adults, 176
Affected Developmental assessment / EIS*, 461
Affected Child welfare services, 298
Affected Residential or in-home hospice care, 104

  • Source: 2002 CARE Act Data Report, Section 3, Items 35
  • Clients served include all individuals who had at least one visit for any eligible service during the reporting period.
  • (*) Early Intervention Services

TABLE OF CONTENTS


 

Percentage Distribution of HIV Positive Clients by Gender Receiving Medical Care from Title II Providers

N=202,184 duplicated clients

Pie Chart containing the following data...
Male medical clients, 136,381
Female medical clients, 64,675
Transgender medical clients, 768
Unknown / unreported medical clients, 360

  • Source: 2002 CARE Act Data Report, Section 5, Items 45
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Percentage Distribution of HIV Exposure among Duplicated HIV Positive Clients from Title II Providers

N=195,195 duplicated clients

Pie Chart containing the following data...
MSM, 59,873
IDU, 25,863
MSM and IDU, 5,415
Hemophilia/ coagulation disorder/ blood or tissue, 2,602
Heterosexual contact, 63,700
Perinatal transmission, 4,832
Other, 4,074
No identifiable risk factor, 28,836

  • Source: 2002 CARE Act Data Report, Section 5, Items 46
  • These data are limited to medical service providers as reported in section 3, item 1a under ambulatory/outpatient medical care provider. Clients reported in section 5 may have received care other than medical and therefore the number of clients reported in section 5 may not agree with the number of clients reported in section 3 under ambulatory/outpatient medical care.
  • HIV exposure information was not reported for 6,989 HIV positive duplicated medical clients
  • Percentages may not sum to 100 percent due to rounding error

TABLE OF CONTENTS


 

Data Considerations

Data in this presentation were submitted by Title II providers, many of whom also receive funds from other sources, including other CARE Act Titles (i.e., Title I, Title III, Title IV, and/or Title IV-Youth). Since many providers do receive funds from multiple CARE Act Titles, it is often impossible for them to distinguish which funds paid for various services they provide. Therefore, the data in these slides do not necessarily reflect services rendered or clients served exclusively with Title II funds. Rather, it is a presentation of provider, client, and service characteristics for providers who received Title II funds.

These data can not be compared with Title I, II, III, IV, or Title IV-Youth data collected prior to 2002. In previous years, HRSA/HAB used separate, Title-specific data systems to collect client and service information from CARE Act grantees and providers. Providers who received funding from multiple CARE Act sources were required to complete separate data reporting forms for each Title-funding they received. Under the new CADR reporting system implemented in 2002, all providers, even those who are multiply-funded, complete one CADR, and report on all clients served regardless of funding source. This provides HRSA/HAB with a comprehensive picture of how CARE Act funds are being used to deliver health care and support services to families living with and affected by HIV disease.

Ryan White CARE Act providers have the option of reporting on eligible or funded services[3]. When they report on eligible services, providers are reporting on any service permitted under any Title of the CARE Act, regardless of whether or not the providers use a specific Title to pay for these services. Conversely, if providers report on funded services, the data they report only includes those services that were actually paid for using CARE Act funds. Reporting eligible services provides a comprehensive picture of the services being delivered to HIV-positive clients.

Title II grantees have numerous providers under subcontract and each of these providers completes the same CADR. While data are unduplicated at the provider level, any summary of the total number of clients served and their demographic characteristics at the grantee or national level may result in duplicated client counts.

Since these data are aggregated at the national or grantee level, clients that may have been new to one provider could be continuing services to another service provider.

Clients served include all individuals who had at least one visit for any eligible service provided by a Title II provider during the reporting period, regardless of additional funding source.

An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year. Affected clients include those who are HIV negative as well as those with unknown HIV status. Affected clients include those receiving Title I and II Early Intervention Services. Affected family members of HIV positive patients are served under Title IV.

“New” clients include clients whose first receipt of services from the provider agency occurred during the reporting period.



 

[1] The estimated number of living AIDS cases are calculated by applying annual survival weights to ten years of reported AIDS cases and summing the totals. The CDC calculates the survival weights and provides HRSA with these data as well as the most recent 10 years of reported AIDS cases.

[2] An affected client is a family member or partner of an infected client who received case management or other supportive services during the calendar year.

[3] All grantees and providers must report on eligible services unless they have prior permission from their HRSA project officer to report only funded services.

 


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