HRSA 2006 Ryan White CARE Act Progress Report: On the Frontlines

 

Case Study: Brooklyn, New York

The Brooklyn Hospital Center’s (TBHC’s) Program for AIDS Treatment and Health (PATH) Center has two locations—one in the Dispensary Building at the corner of Ashland Place and DeKalb Avenue, and the other at Caledonian Health Center at 100 Parkside Avenue, which runs along Brooklyn’s Prospect Park. At both locations, PATH has set the benchmark for creating colocated services. Here, they aren’t just offered in the same building. They are offered on the same floor.

“Colocated services are not a luxury for the people we serve,” explains Dan Sendzik, PATH’s executive director, “and we realized that when we started the program 10 years ago. It was abundantly clear that places like Brooklyn—with historically underserved and impoverished racial and ethnic minorities—were the new frontier in AIDS,” he adds.

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Dr. Leonard Berkowitz is PATH’s medical director and Brooklyn Hospital Center’s chief of infectious diseases. He hired Sendzik in 1997, and shortly thereafter, Caledonian closed its inpatient care unit. Despite the loss of an inpatient facility in the Prospect Park neighborhood in Brooklyn, Sendzik saw the glass half full.

“I knew that if the hospital would give us some of their vacated space,” he says, “we could create a system of care that responded to patients’ many needs, all under one roof.” Sendzik’s wish was granted, paving the way for PATH to provide access to the array of onsite services that are available today.

Many of these services are Haitian-focused and include the Haitian Centers Council, Diaspora Community Services, Church Avenue Merchants Block Association, Grenada Women’s Organization, and New World Creations Resource Center. They offer services like job training, housing support, information about domestic violence, counseling, instruction in English as a second language, and computer training. One organization works to improve the literacy level of mothers so that they can read to their children.

Zipcode 11226 is the primary catchment area for the PATH Center and lies in the center of Brooklyn, a borough that geographically is much larger than Manhattan and that reflects both the epidemic of the 1990s—new infections among the very poor—and ironically, also, the epidemic in its early stages. There is a large population of Haitians, a group that early in the epidemic was classified not as a culture or a race or an ethnic group, but as a risk factor. They are estimated to be just over 74,000 strong in Brooklyn, and they reflect as much unmet need today as they did when the epidemic emerged in 1981.44

Open Doors

“Over the last 10 years, the Center has grown in ways that make it increasingly reflective of clients’ needs,” explains Sendzik. Of PATH’s 44-member staff, 8 are Latino, 1 is Arab, 1 is Asian, 11 are African-American, and 10 are of African Caribbean descent. Among the latter are Dr. Roselyne Chery, a doctor from Haiti, and Angela Campbell, a nurse from Jamaica. Dr. Chery speaks Creole to the clinic’s 200 Creole-speaking clients.

With PATH having approximately 900 patients at the end of the first quarter in 2006, one might expect to find an overcrowded waiting room or clients who have little face time with staff, but that’s not the case. What one finds instead is an atmosphere in which patients are helping one another, where Sendzik, Berkowitz, and the entire staff seem to know every patient by name—and where Yvonne Kingon, the pediatric nurse practitioner, wears a green lizard stuffed animal around her neck. You’ll find a mural depicting community life painted along the wall as a thank-you from one of the Center’s clients. And you’ll find Dr. Mahmoud Hassanein, a pediatric infectious disease physician, whose clinic treated 96 HIV-positive or HIV indeterminate patients under the age of 24 in 2005—over half of them were children under 12.

Feeling at Home

While visiting the PATH Center, you’re also likely to run into Mildred Wallace, the Center’s first peer advocate. “I’m someone a lot of patients can relate to,” says Mildred. “I figure this is my life’s journey: to pass on what I’ve learned to help someone else.” Wallace recalls how the PATH Center helped her overcome her own battle with addiction and her fight for community. Clean and sober for more than 10 years now, Wallace remembers how the staff didn’t look down on her and instead lifted her up. It was particularly poignant for her that the staff used gloves only for internal exams, but not for shaking hands. It was acceptance that she, like so many of the patients she now works with, have found hard to find.

“I’ve been where many of our patients are now,” says Wallace. “I identify with them in a way that many other people on staff can’t.” She adds that she knows what it’s like to build a life from the ravages left by addiction, and to deal with the challenges posed by stigma and lack of acceptance.” At a holiday dinner for my family,” she recounts, “there was real china and silverware for everyone but me. Mine was plastic, and while everyone else was seated according to their age—adults at their tables, children at others—I was relegated to the kitchen counter.”

Not surprisingly, Wallace hasn’t been to a holiday dinner with her family for a long time, nor has she visited an aunt she loved, who put covers on the doorknobs before her visits. “The message was loud and clear.” says Wallace. “This was not where I was meant to be.” It is a message that many clients at PATH get in response to their HIV status.

“We forget how meaningful it is,” says Wallace “when someone finally remembers your name or talks to you about your problems. So many of our patients have nowhere to turn. And, as providers and advocates, we get involved in our own day-to-day lives and fail to remember that we are making a difference—like I had the other day, when a patient came into the clinic, walked up and hugged me, and said, ‘You saved my life.’”

A Light in the Window

In 10 years, the number of people treated at the PATH Center has more than quadrupled. After people find the Center, they keep coming back, and the next time they bring their friends. A testament to the power of word-of-mouth: the majority of new patients are referred by current clients.

Sendzik and Berkowitz are the biggest supporters of PATH and their patients but also the biggest critics of the organization’s inability to meet some needs. They are especially troubled about the unmet need for mental health services among their clients.

“Our vacancy for a psychiatrist is a hard sell,” says Berkowitz, “because TBHC has no inpatient mental health services unit. This means that, at least from the clinical care perspective, the person we hire will have to go it alone. So now, while we offer counseling onsite, more intensive mental health services are provided offsite by other providers.”

Working with Diaspora, one of the community-based organizations just down the hall, PATH has found at least a stopgap solution. Diaspora is applying to the State to become a certified mental health services provider, and if that happens, clients will be able to walk down the hall to receive mental health services instead of traveling across the borough of Brooklyn.

Sendzik and Berkowitz love their work, and they welcome PATH’s continuous flow of new patients. Their hope is that the clinic will continue to grow with the need that is so evident in this part of Brooklyn. “We want to create an identity,” says Sendzik, “that says to all of Brooklyn, ‘if you have HIV/AIDS, get your care here.’”

 

Brooklyn Hospital Center, 2005 Total number of clients with HIV: 882* Total number of new clients with HIV: 183** HIV-positive patients with private health insurance: 9% HIV-positive patients at or below the Federal poverty level: 97% *Includes 19 infants whose HIV status is indeterminate. **Includes 3 infants whose HIV status is indeterminate.

Brooklyn . . . reflects both the epidemic of the 1990s—new infections among the very poor—and ironically, also, the epidemic in its early stages.

Doctor and nurse reading over some material.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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Did You Know? Section
 

In 2004, 50 percent of HIV-positive Care Act clients were living at or below the Federal poverty line.

Haitians were identified as a risk group for HIV as early as 1982.

In 2004, approximately 59 percent of CARE Act clients were racial minorities, and 23
percent were ethnic minorities.